To Oakley’s Mom,
I’ve been praying for you and your family since I first heard about Oakley in November. I can’t imagine what you are going through. My youngest nephew, Connor, was born on 6/18/05, his birthday is close to Oakley’s. Connor has blonde hair and blue eyes….and a severe peanut and tree nut allergy. In first grade some bullies at lunch teased him and tried to force him to eat a Reeses Peanut Butter cup. Those bullies knew Connor could die if he ate it, but they didn’t care. My sister immediately pulled both boys from public school and now has both of my nephews in home school/cyber school. We had three major scares with Connor. Twice he was in anaphylactic shock. I witnessed one episode, I’ll never forget it.
When you posted on the two month anniversary of your loss I cried for you and your family. Your strength through your grief gives hope and strength to others.
What you are doing to honor Oakley’s memory is amazing. You have already saved lives by sharing Oakley’s story.
Besides donations, how can I help spread the word of the severity of food allergies? I work in a business park outside of Pittsburgh, PA. Mylan is headquartered there. I called them many times in a professional manner inquiring about the skyrocketing price of their Epi Pens. I’m anaphylactic to certain foods, so I carry an Epi Pen at all times, but my sister told me they are not 100% effective all the time. I’m glad that Mylan is now offering a generic form of the Epi Pen at a lower cost so that families can afford them. My question to Mylan every time I called was “how many children have to die before you make these affordable?” I had met my deductable last year and the cost was still $500.
Please let me know how I can help spread the word, I’ve shared Oakley’s story on Instagram and Facebook….but I want to do more. I’ve shared the Allergy Eats app on social media as well. Connor is so excited for this app as going out to eat causes anxiety for him.
I bought red glitter sneakers because glitter attracts attention and I hope people comment on them when I’m out so that I can raise awareness through word of mouth.
I continue to pray for strength and healing for you and your family.
My sincerest condolences to you and your family. I can’t imagine what you are going through.
I’m emailing to let you know what an impact Oakley’s story has had on me with regard to my son’s condition. Since reading your story this morning our action plan has completely changed. My son, Sam, like Oakley has a tree nut and peanut allergy. He was first diagnosed when he was 4. He’s now 11. Until last weekend he hadn’t had a reaction since he was 4. We spent Friday night in the ER after his lip began to swell and continued to swell for hours.
He recovered and is doing well but my first line of defense was Benadryl. That’s what we had been told to do at first sign of symptoms and to only use an Epi-pen if he had trouble breathing.
After reading your story this morning our plan now is to give him his Epi-pen immediately.
From the bottom of my heart I wish this hadn’t happened to you and your family but I want to thank you for making us aware of the circumstances of what happened. By doing so, we’ve changed our action plan. By doing so, you may have just saved my son’s life. And for that I am so so grateful.
And because of that we will never forget Oakley…
Prayers for you and your family.
– Rich Falk
I just wanted to let you know of yet another life you and Oakley have saved.
This weekend, while at a family party my son came downstairs with hives around his mouth. We had all just eaten and he had been playing upstairs w his cousins. We had our epiPens but no Benedyl, so we put some cortisone on him and kept an eye on him. About 15 minutes later, the hives dissipated and he went back upstairs to play. 10 minutes later he came back down to tell me his throat was hurting and I noticed him wheezing. He began coughing and his nose was pouring.
I immediately grabbed our epiPen and injected him. He got a round of steroids in the ER and is doing much better now
I am writing this because there was a time, where I’d look for any excuse not to give the epi (oh it’s asthma, maybe he’s just getting sick, etc etc). I was constantly second guessing myself or thinking I was over reacting. This time however, there was no hesitation. All I could think of was Oakley’s story and I knew I had to act and fast!
Thank you from the bottom of my heart! You are true heroes.
Sharing your story…you have already helped so many of us families with kids who have nut allergies. I wouldn’t have given my daughter her epi pen for a reaction like oakley had prior to hearing your story. Now I will. Last July my 3 year old had hives around her mouth after eating sunbutter and I gave her Benadryl and drove to the ED. It must have been tainted with peanut butter. (We were at her grandmas house) We could have easily been in your shoes. I think of you almost daily. You are saving lives while honoring Oakley. Thank you thank you thank you thank.
Thank you. From the depths of my soul thank you.